Tuesday, February 22, 2011

Leo turns 5!

Leo's birthday is always particularly significant as his age is the age of my diagnosis of a tumour. I am so proud of who he is, in fact all of my children. I love being able to talk and reason with my kids. I have had a sore on my foot for  a week now and it is bugging me. So yesterday I was complaining to myself, while putting the plaster on my sore. Leo looked at it and said

"I don't know why you have a vrot (disgusting) foot? Only old people like granny have vrot feet and you are too young for that vrotness" - Yes, he is only 5 - at least he thinks his mom is young - 1000 points!!

He also said that "All my children ate the cake" - that would be his peers at school!

Friday, February 18, 2011

Granny Lady

OH I FORGOT TO ADD: Dr Dupper said I am lucky to have veins! Apparently radiation effects carry on right through your life. It seems as though my skin is a bit thinner in that radiated area. So am I going to be a Granny on one side of my face? What the hell? I am going to have to swop sides of the bed with James so that he can see my "young" side!

Wednesday, February 16, 2011

MRI results

Well after another nail biting MRI and many prayers while lying in the machine ... the scan results show that the tumour has shrunk even further!! I was so relieved to hear the news and have the ordeal out of the way. I was really trying to avoid it, primarily because I was scared of bad news. Now I realise that it is just so much better to tick it off the list rather than let it become a burden and distract you for your goals.

While lying in the MRI machine, I went through a serious of "what ifs" There are so many things that I want to do and achieve that it would be such a blow to hear anything but good news.  It just made me realise how much our health is a deciding factor in our abilities - but on the other side - when we do have health on our side, we should make the most of it. That is exactly what I intend on doing.

So now I can put it completely out of my mind until August. What a wonderful feeling of relief! An OF COURSE I am so blessed and grateful to be reminded that my gift of life is still glowing.

Monday, February 14, 2011

Scan tomorrow

Well I have made the decision to have the check up MRI tomorrow. A scary concept as always. The main reason for doing it tomorrow and not putting it off till after the exhibition is that this weekend my artery / vein is budging out on my left temple. To say this whole thing freaks me out is an understatement.

So we will see what tomorrow has in store for me! Sigh...

On a lighter note, Saturday we had a tea and I gave a talk. It was just a lovely atmosphere. I must admit I was totally exhausted after that.

This week is proving to be another busy one and I am hoping to somehow get the BTFSA sponsorship and pamphlets sorted out. It is a lot of work for one person!

OH AND OF COURSE : Happy Valentines Day!

Tuesday, February 8, 2011


The weeks just seem to fly by without me noticing. Nancy is out of surgery and all is well. She is experiencing the usual symptoms after surgery - fatigue, swelling, bruising and anti climax. BUT all is good and that is the main thing. She is just waiting for her biopsy to come back.

Dr Morkel returned my call on Sunday evening to commend the efforts with the brain tumour foundation. He mentioned something quite interesting, he said (in my interpretation) that patients are needing basic support and information. For example, when patients have flu they call their neurosurgeon worrying that it is related to the tumour. I was thinking how true that is. So one of the things we need to do is set up a forum where people can share information and assist with questions where possible.

We have a logo for our foundation! I thought it was very clever as it shows people putting their heads together, it is a variety of colours like our flag and in the centre it has a white dove. The logo was designed by Marcos Adri·n Echeverr√Ća Paredes as a free download and modified for the foundation by Jamie Bell of Fury Fighters.

I have also done a sticker for our BT Survivors!!

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